Palavras

Esta nuvem de palavras representa um pouco do meu viver.

 Tudo é um esforço, uma limitação.

Na civilização da escrita, não consigo escrever… 

Eu me sinto diferente, às vezes, acho tudo em vão.

Não tem palavras para descrever.

Uma vida com câimbra do escrivão.

True Life with WC

This post was written because of the  True Life Tuesday: Blog with us today”  proposed by Wegohealth Blog. I could not do it on Tuesday. But, It’s here!

You think you know but you have no idea what is living with dystonia since childhood. You have no idea what it means to live with  W.C. (Writer’s Cramp) since my childhood.

You think you understand, but you have no idea what it is to live and study without being able to write.

You have not idea what it means to work to sustain yourself even with this disease.

No one has idea of the effort that I do to make things living with dystonia. No one knows the size of loneliness which is living with a disability.

You think you understand, but have no idea of the feelings of sadness, social phobia and anxiety that is related to the person who lives with writer’s cramp.

You can understand what it is to have a physical disability, but has no idea what is prejudice and amazement that people do when witnessing what is different. Nobody has any idea what is at all times be explaining what is happening to everybody; why my hands are crippled, why I can not write or type, why I can not get the cutlery usually…

You have no idea how annoying it is to live with a disease that has no cure and you can not do much to improve or stabilize this neurological limitation.

Anyway, you think you know but have no idea on the size of the despair that sometimes I feel because I want to write or type normally, but I do not.

Uma foto e Uma frase

Esta semana  eu encontrei duas coisas no facebook que me deixaram ao mesmo tempo pensativo e emocionado. Na verdade, estas duas coisas são uma foto e uma frase que marcaram a semana.

Uma delas é uma foto de outrora que me fez voltar ao passado e lembrar de coisas boas. Eu ri muito quando vi esta foto. Se eu não estou enganado, esta foto foi tirada num evento que participei na praia de Itapuã – Salvador. Acho que este evento foi em meados de 1985 e eu me recordo muito bem da maioria das pessoas que são do nordeste. Eu sou o segundo da direita, em pé.

 A outra é uma frase que eu gostei muito e está no perfil do Chaves no facebook. Esta frase me fez pensar em como a maioria das pessoas vivem de máscaras, são superficiais e sem originalidade. Preferem se esconder na multidão e na normalidade imposta pela sociedade ao invés de serem únicas e íntegras. 

Praia de Itapuã – Salvador

Challenge completed

I really enjoyed participating in the HAWMC marathon promoted by Wegohealth and I was very happy because I managed to do 30 posts in april. I’m very proud of it!

I think this initiative  of the wegohealth staff was very nice because all who have a blog and enjoy writing about health and his condition as a way to collaborate with all who suffer, they need experiences like this.

I think the HAWMC was very creative and really was a challenge. I just didn’t do more best posts because my job requires me very much, writer’s cramp brings me serious limitations and my English is not very good. But despite the difficulties, I managed to get to the end of this marathon.

Congratulations to all who could join to the HAWMC and congratulations to  wegohealth  team because of activities like HAWMC  that help much  everybody  to improve their blogs  and be more professional in this experience of writing. We all learned playing with this challenge. I can say with Amanda and the entire team: Congrats on Completing #HAWMC 2012!

Finally, I liked all the articles I did, but I could highlight the posts from day 3 – Superpowerday; day 6 – Health Haiku; day 10 – A letter to my 16-years-old;  day 20 – Miracle Cure;  day 24 – Health mascot; day 28 – The first team I.. ;  day 29 –  Six sentence; and day 30 – Word cloud. I wrote some articles in Portuguese because this is my native language. I think writing a blog and participate in HAWMC must be an interesting exchange of languages and cultures.