Living through Writer’s Cramp


When I read the article “Your fear, my fear”  written by  friend Andrea Robinson, I was quite moved on because she described a feeling that always haunted me in my journey with dystonia. She was able to describe in a few words some situations that lets anyone in emotional disarray due to illness. Actually, I was very glad to have found his  “Dystonia & Functional Movement Disorder Sufferer”  Blog  which addresses a life experience with dystonia in a peculiar way. And it has beautiful stories that are filled with feelings.  It tells about more one story of a life with dystonia.

The article talks about the fears that plague patients with dystonia. In my case, the fear also always been present in my life so devastating. A fear of the unknown, a fear of the uncertain and volubility condition that is peculiar for dystonia.  The fear of living the rest of my life with dystonia.

While reading the article I had some insights as the memory of my struggle to live well with dystonia since childhood. At the time I did not know I was a dystonia sufferer. I did not understand what was happening to me. This has always caused terrible fears.

One of these memories is that in my  childhood  I had no coordination of the legs nor arms. I always knocked things unintentionally. When I was running or walking, the legs sometimes did not fit to command. Generally, I felt fine and strong pain inside the head and I was  with very red face when I ran or played soccer. The pain was so great that I always sat down and put my hand on my head. Over time, I learned to use breathing slowly. This helped greatly. In my teens, I started practicing yoga, which has helped me to live through dystonia to the present day.

Another memory was the significant fact I face the difficulty of writing when I was beginning to learn to read and write. I remember it was very difficult to write and I always cried a lot. All this was the trigger for developing the most terrible fears that began to haunt me to this day. I became a fearful boy …  A boy afraid of becoming invalid and a dependent person …

But I think one of my biggest fears today is that my focal dystonia will be just a tip of the iceberg of generalized dystonia. This was always enough to leave me alert! I have lived through dystonia, rather! I have  lived in fear since the earliest times to the present day, rather!

Os números de 2012

Os duendes de estatísticas do prepararam um relatório para o ano de 2012 deste blog.

Aqui está um resumo:

600 pessoas chegaram ao topo do Monte Everest em 2012. Este blog tem cerca de 12.000 visualizações em 2012. Se cada pessoa que chegou ao topo do Monte Everest visitasse este blog, levaria 20 anos para ter este tanto de visitação.

Clique aqui para ver o relatório completo