Introduce your condition(s) to other Health Activists. What are 5 things you want them to know about your condition/your activism?
To write about my health condition to other health activists I re-wrote a post that I had done called: “A lifetime with writer’s cramp”. I liked it very much and I think that this text expresses much more than five things the readers need to know about my condition. It was written in December 2012.
I do not know what it is to live without dystonia.
I was born with this neurologic movement disorder.
Since my childhood I always had serious trouble writing.
I did not understand what was happening to me.
Everyone wrote. I could never write normally..
I always rehearsed for writing.
I picked up the pen strongly and I always was slow when writing a short text.
Writing has always been difficult and a lot of discomfort.
I never understood …
I was born this way. I do not know how it is to live without writer’s cramp.
In my life there is no borderline between life before and after dystonia.
I always isolated myself from other colleagues. I have this tendency to be alone, today.
I’ve always had difficulty with the fine psychomotor coordination.
I think the dystonia has not worsened because I have always practiced Tai-chi-chuan.
Currently, I definitely can not write.
Typing, grip a fork, grab a cup of coffee, leaf through a book and things like that have become a discomfort and a great challenge.
I have lived with little involuntary spasms, with crooked and almost totally invalid hands for specific tasks.
I still think all this is strange and a real nightmare!
I still have not got used to this condition.
I am no longer sick or in pain because of acupuncture treatment …
Because of virtual friends that I have madden in the last two years. They help me with their testimonials to have a willingness to continue living well with writer’s cramp.
Because of my Dystonia BloggerMania that aims to promote awareness of the disease.
I still think there will come a day where I can demarcate a line between my life pre and post dystonia …
…I believe a cure will be found!