Today’s Prompt: Today, write a recap of your experience. What was your favorite prompt? Least favorite? What have you learned? Describe your HAWMC experience in one word!
I really enjoyed taking part of this challenge. I confess that it was not easy to write a post a day, despite the prompts were very interesting and nicely drawn up.
I do not know much to say, but this event was a moment of a great learning and this was a month of education and raise awareness about our conditions. I think this was a month of reflection about our health activism.
HAWMC is definitely an important event for Health Activist Blogger.
I had the opportunity to meet many bloggers and share other conditions. This is important for our self-esteem.
Finally, I liked most of the prompts, but I want to highlight, at this moment, the following posts:
Day 2 =Introductions: A Lifetime with Writer’s Cramp
Day 7 = Ridiculous Things about Writer’s Cramp
Day 8 = The Crab and the Writer’s Cramp
Day 12 = Hindsight:a diagnosis of writer’s cramp!
Day 14 = Spread the Love!
Day 15 =Sharing “Go Blue”
Day 21 = Dystonia Bloggers: a flower in the wilderness
Day 22 = Everyday life of a Blogger!
Day 23 = No technology, harder health activism!
Day 25 = Learning about Dystonia
Day 26 = Pain-Free Pass
Day 27 = Books of a Man with Writer’s Cramp
Day 28 = Must Follow!
Well, I can describe my HAWMC experience as follows: a real CHALLENGE, “Go Blue for all Health Conditions!” and ” Health Activists Bloggers: a flower in the wilderness”.
Today’s Prompt: We all know Health Activists are awesome. Share three things you love about yourself, things you’re great at, or just want to share. Don’t undercut or signpost!
I confess it was not easy for me to get so far: day 29. The challenge of writing a post a day can be a big effort for anyone. Just imagine how difficult it is for a person with writer’s cramp. I have used adapters to write and type. Even so, I feel a great discomfort and I’ve done a tremendous effort that most of time discourages me use simple things like a pencil and a computer… I think this is one of the things I like about myself, the determination and the persistence.
Another thing is that I’m great at my profession. I consider myself a good psychotherapist and I have a peculiar way to deal with people: empathy and comprehension. What a modest guy! A psychologist living with Writer’s Cramp.
Finally, I am a compassionate, fair and a good man. I always try to make the Good! It is no wonder that the name of my blog is: Good Men. A good man living with dystonia.
Congratulations on a great month so far!
A special thanks:
I am very grateful to my wife for having patience with me and take care of me in order for I shall live better with writer’s cramp. Although she could not do much for me, at least, she gives me affection, help and support.
Today’s Prompt: Create a must follow list for your community on a single social network. Share your top 5-10 tweeters, blogs, or Facebook pages.
I have a list on Facebook about my condition and that I access with frequency to share the daily life of people with dystonia. Among these, I suggest the “Dystonia BloggerMania” group created by Pamela Sloate which brings together dystonia bloggers. Check out the “Must Follow List” below:
1º) Dystonia BloggerMania – USA
2º) Face2Face Dystonia – USA
3º) Support4Parents of Children with Dystonia – USA
4º) WEGO Health – USA
5º) SOUTENONS AMADYS – France
6º) Câimbra do Escrivão – Brazil
Here another Must Follow List about Dystonia Blogs:
1º) Pamela Sloate at Chronicles of A Dystonia Muse – USA
2º) Pat Brogam at Battery Powered Person – USA
3º) Paddy Doyle at The God Squad – Ireland
4º) Marissa at Abledis – USA
5º) Dr. Marie-Helene Marion at BTX – England
If you are a dystonia sufferer, you must follow these blogs and these online community groups on facebook. My “must follow list” about dystonia blogs is higher. You can check on the my own blog’s sidebar.
Today’s Prompt: Titles – if you wrote a book about your life, your community, your condition, or your Health Activism – what would you title it?
I think if I were to write some books, the titles were these following:
A hard Journey with Writer’s Cramp: living without writing – A book about my life;
My Experiences with Dystonia BloggerMania – A book about online community and dystonia blogger;
Writer’s Cramp and Mental Health – A book about my health condition;
The Life of a Leader with Writer’s Cramp – A book about my health activism and Leardership;
Chronicles of a Man with Writer’s Cramp – A book about my health activism.
I think writing these books can be a future project. In fact, a great project aimed at educating and raising awareness about dystonia!
I hope this happens at a time that the cure for dystonia is found and I can at last demarcate the boundary line between my life pre and post writer’s cramp.
Today’s Prompt: What’s a day that you wish you could have used a pain-free pass (either in the future or the past)? How would being pain or worry-free impact that day?
I would wish that starting this month I won a inner pain-free pass that I feel because of writer’s cramp. It is a pain of the soul because of the discomfort, cramps and twists of the hands. A pain of despair and anguish by trying to live in the civilization of writing without writing. A pain deriving from so much effort to live well with dystonia …
I wish I could have used a pain free pass to live without the writer’s cramp for the rest of my life. I do not know what it is to live without dystonia. I was born with neurologic movement disorder. The only thing I wanted was to live in peace and without so much suffering!
I could never write normally… I always rehearsed for writing. I have picked up the pen strongly and I always was slow when writing a short text. Writing has always been difficult and a lot of discomfort. I was born this way. I do not know how it is to live without writer’s cramp. In my life there is no borderline between life before and after dystonia.
I have lived with little involuntary spasms, with crooked and almost totally invalid hands for specific tasks. I still think all this is strange and a real nightmare!
This month, I would like to can demarcating a line between my life pre and post dystonia … I would like to know how it’s to write without much effort. I would like to know how is it typing, griping a fork, grabing a cup of coffee, leaf through a book and things like without making a big discomfort and effort.
Today’s Prompt: We don’t stop learning when we leave the classroom. Share something you learned from another Health Activist (Share their name/blog/website!).
Life with Dystonia, was the subject of a conversation that Dr. Marie-Helene Marion, a Frenchwoman neurologist specializing in movement disorders, had with a support group for people with dystonia in London , about 12 months ago.
According to her, the dystonia is or becomes a source of disability; a source of pain considering that the diagnosis often is delayed; a source of anxiety and a source of despair.
According to her, the patient should become an actor of their treatment, they should be well informed about the disease, having knowledge of the disease’s entire process and possible treatments and each case should be handled as only.
All this has been said by the neurologist is not new to me, but I learned a lot from these reflections because we can only live well with dystonia if we have well informed about the symptoms of the disease and its peculiarities manifested in every person. What caught my attention is the fact dystonia be a source of a depression, distress and despair.
At the current moment, I think what everyone should know is that every patient should be an actor of their treatment and that each case must be carefully treated as unique. And everyone should know that Dystonia is more than a movement disorder!